I wanted to make this account for many reasons, but I am going to be honest and real on this page because chronic and/or invisible illnesses are messy and, sometimes, shit can get really rough. I think I will mainly post updates for my family and friends (or whoever needs it) because it’s very hard to keep everyone I love updated and I’m really sorry for not always responding about things health related; it can all be complicated and a lot to explain. Hopefully, this will be a much easier and convenient way to keep you all updated. 😊
Basically right now, I am waiting to get this tube back in my nose for a few months 🙄🤕 (I’m obviously not a fan of the nose tube), but my new GI doctor in Iowa City said we need to make sure my body can handle the tube feeds before going through surgery to get a permanent feeding tube (j tube). Honestly, I am just so relieved to finally be getting a tube placed (after 2 months of waiting) and feel a little better. Forcing myself to eat and being in extreme amounts of pain 24/7 has been extremely exhausting 😅. Eating is not enjoyable for me; it just causes me pain and nausea. It sucks.
The other health related issue that has been extra rough lately is that my lupron (hormonal chemo) shot is over a month late and I think I am coming out of my temporary menopause (because of the shot being late), causing me to be both a physical and emotional mess 😂🙃. •
But I am pushing through and doing okay. I’ve been trying to accept that I need these things to survive, and I really am thankful this equipment exists to help me feel just a little bit better. Thanks for caring and listening. Don’t be afraid to ask questions. I’ve accepted this is a part of me and it’s made me pretty badass so I’m thankful and at peace with it 😊😂🖤. •
#eds #mastcellactivationdisorder #mcas #endometriosis #fibromyalgia #autoimmunedisease #aag #feedingtube